Institute scientists and guests at the Institute’s “Hands off my health records?: why sharing your health data matters” discussed the use of data on Sunday at the Cambridge Science Festival. The panel emphasised that healthcare is founded on the use of health records, which have the power to transform treatments during illness and boost research efforts to help people live longer with fewer health problems.
The panel was: Professor Peter Jones, Deputy Head of the University of Cambridge’s School of Clinical Medicine, who will chair the panel;
Dr Jem Rashbass, whose work on cancer data has helped to make England’s National Cancer Registration Service one of the most advanced anywhere in the world;
Dr Lydia Drumright, whose research at Addenbrooke’s Hospital highlights how data sharing can transform healthcare – Lydia is helping to shape the Addenbrooke’s eHospital programme;
Professor Sheila Bird, a leading Medical Research Council biostatistician who wants to advance techniques for making data sharing more secure from the public’s point of view;
and Professor Liam Smeeth from the London School of Hygiene and Tropical Medicine, interested in how our GP health records can be used to help research, and how genetic research can inform our knowledge of the underlying causes of disease.
The progress we are making at Addenbrooke’s and beyond with sharing health records means researchers, healthcare professionals, and the public can work together for a healthier future, while respecting individuals and keeping personal information safe. This event highlighted the progress being made and opened up questions about protecting patients’ data as well as their health.”
Professor Jones, Chair of the panel and Deputy Regius of the University’s School of Clinical Medicine